Congenital Diaphragmatic Hernia, CDH, ECMO, CDH Support, Charity Golf

DHREAMS (Columbia University)

DHREAMS (Diaphragmatic Hernia Research & Exploration; Advancing Molecular Science) is an international study of the genetic causes of diaphragm defects, led by clinical and molecular geneticist, Wendy Chung, MD, PhD and genetic counselor Julia Wynn, MS at Columbia University Medical Center.  The goal of the DHREAMS study is to better understand the genetic causes of CDH to lead to better treatment, diagnosis and prevention. Since its inception in 2005, DHREAMS has expanded to 11 other clinical sites across the United States and Egypt. At each of these locations, families affected by congenital diaphragmatic hernia are invited to be part of the study. Families all across the country and world, not treated at one of the DHREAMS locations, are also able to enroll in the study and through our website (www.cdhgenetics.com). The DHREAMS study coordinates enrollment with the family’s treating providers, and there is no cost to the family. We now have over 800 DREAMS families from almost all 50 states and 8 different countries. “The Fore Hadley grant will be tremendously helpful in ensuring that DHREAMS has the funds needed to continue to enroll families, lead the way in genetic research of CDH, and provide future families answers to possible causes of a CDH diagnosis.”


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